Category Archives: MS Gets on Your Nerves

Also, My Mother

I am fighting with Netflix. I realize it must look like I am blogging, but what I’m really doing is fighting with Netflix. Also, my mother. I’ve been fighting with my dead mother since Monday at about 8 am. That … Continue reading

Posted in MS Gets on Your Nerves, The language of families | 1 Comment

All my Thoughts on Thoughts and Prayers

I’m gearing up for my next round of MS drugs. For those who haven’t been following along, this is where evil pharma shells out $70,000 in compassionate coverage for drugs that my insurance won’t pay for. These drugs are chemo … Continue reading

Posted in MS Gets on Your Nerves, The Cheerful Agnostic | 6 Comments

But Without the Sword

As I was driving home on Thursday, I listened to an exiled Egyptian Political Satirist and Comedian.¬†Egypt, with all of its turmoil and upheaval, does not exactly seem like a funny kind of place. The current regime in Egypt is … Continue reading

Posted in MS Gets on Your Nerves | 2 Comments

In the Middle

Yesterday was a bad day. I cloaked it in gallows humour, jokes about not having time to die. An innocent email to the MS nurse (I have 21 bruises on my legs and arms. I don’t know where they are … Continue reading

Posted in MS Gets on Your Nerves | 4 Comments

Our Penitence and Our Mortality

I went to Ash Wednesday mass last week. I still don’t know what I feel about the good Lord. I don’t believe what I did. I still like going – I’ve been going to this service for most of my … Continue reading

Posted in Living Deliberately, MS Gets on Your Nerves | 3 Comments

Zen Like

On January 6th I emailed my Neurologist to confirm I wanted to switch my MS Drugs. This morning I got the¬†notification that while the insurance paperwork wasn’t complete, the drug company was covering my drugs anyway. 55 days. I had … Continue reading

Posted in MS Gets on Your Nerves | 4 Comments

Things I’ve Learned

I’ve been trying to write a post the year since my diagnosis, and in all honesty, I just can’t seem to. How do you sum up so very much in black and white words? Mostly I’ve just been thinking about … Continue reading

Posted in MS Gets on Your Nerves | 2 Comments

MS Update

Well, it’s been about a year since my diagnosis, and that means it’s time for another thrilling visit to the Neurologist. It’s like going to Winnipeg – cold, a bit dreary, with spurts of activity and some very nice people. … Continue reading

Posted in MS Gets on Your Nerves | 1 Comment

Everything to Everyone

In January I did 2 things – I was referred to a rehab clinic for a comprehensive review of MS, how the relapses have affected my ability to function and to get some assistance in coping with the disease. I … Continue reading

Posted in Learning Life, MS Gets on Your Nerves | 4 Comments

A Few More Inches

I had a little plan for how this week was going to go. Hang on. Let’s start at the beginning. I have to write code for a workflow engine this week and I have the whole week to do it. … Continue reading

Posted in MS Gets on Your Nerves | 1 Comment