Category Archives: MS Gets on Your Nerves

Everything to Everyone

In January I did 2 things – I was referred to a rehab clinic for a comprehensive review of MS, how the relapses have affected my ability to function and to get some assistance in coping with the disease. I … Continue reading

Posted in Learning Life, MS Gets on Your Nerves | 4 Comments

A Few More Inches

I had a little plan for how this week was going to go. Hang on. Let’s start at the beginning. I have to write code for a workflow engine this week and I have the whole week to do it. … Continue reading

Posted in MS Gets on Your Nerves | 1 Comment

Opinions

Sometimes the hardest part of having a chronic disease is being gracious to the people who are patently watching out for you and your health when you are clearly not doing it yourself. Damn MS. I over did it the … Continue reading

Posted in MS Gets on Your Nerves | 5 Comments

Metallic Taste (Part 1)

My memory is visceral, based upon smell and taste and sound. The smell of my mother’s perfume still leaves me a bit off kilter, if not slightly uneasy. Wood smoke takes me hiking in high school. Hotel California on the … Continue reading

Posted in Flying with Warthog Air, MS Gets on Your Nerves | 1 Comment

Inspirational

Saturday was a “real” MS day. I stayed up too late on Friday. I had a skype call with niece the eldest, I was working on something and chatting to a friend in Australia and I looked at my clock … Continue reading

Posted in MS Gets on Your Nerves | 3 Comments

MoJo

I had a bit of an epiphany last Friday. Here’s a bit of a spoiler for you – you already know what I’m going to say. I’m choosing to embrace that I showed up for the party at all, rather … Continue reading

Posted in MS Gets on Your Nerves | 4 Comments

Who Only Stand and Wait

Grade 11, I think, we had to memorize Sonnet 19 –  When I Consider How My Light is Spent which is Milton’s poem about going blind. I was 17 and impatient when I asked what the purpose of memorizing poetry was. … Continue reading

Posted in MS Gets on Your Nerves | 2 Comments

Hallelujah

It’s a cold and broken Hallelujah.  Hallelujah is by definition a word of praise and rejoicing. You shout it when you are happy, when you have something to celebrate. I have been looking, since diagnosis, for the moment when I … Continue reading

Posted in MS Gets on Your Nerves | 5 Comments

Not Ok

I fake it well. I really do. Through a tough day with a staff member who had to be disciplined even though I like him,  through a hard workshop, through telling my family, I fake it well. I do what … Continue reading

Posted in MS Gets on Your Nerves | 11 Comments

Watch Maker’s Entropy

Sitting in my third year philosophy class, I had no idea that the questions could be so real at 35. Is God a watchmaker then? Is he the a priori creator of the universe, the omni, omni who called the … Continue reading

Posted in MS Gets on Your Nerves | 7 Comments