Category Archives: MS Gets on Your Nerves

Saturday was a “real” MS day. I stayed up too late on Friday. I had a skype call with niece the eldest, I was working on something and chatting to a friend in Australia and I looked at my clock … Continue reading →

I had a bit of an epiphany last Friday. Here’s a bit of a spoiler for you – you already know what I’m going to say. I’m choosing to embrace that I showed up for the party at all, rather … Continue reading →

Grade 11, I think, we had to memorize Sonnet 19 –  When I Consider How My Light is Spent which is Milton’s poem about going blind. I was 17 and impatient when I asked what the purpose of memorizing poetry was. … Continue reading →

It’s a cold and broken Hallelujah.  Hallelujah is by definition a word of praise and rejoicing. You shout it when you are happy, when you have something to celebrate. I have been looking, since diagnosis, for the moment when I … Continue reading →

I fake it well. I really do. Through a tough day with a staff member who had to be disciplined even though I like him,  through a hard workshop, through telling my family, I fake it well. I do what … Continue reading →

Sitting in my third year philosophy class, I had no idea that the questions could be so real at 35. Is God a watchmaker then? Is he the a priori creator of the universe, the omni, omni who called the … Continue reading →

There’s this moment when Travis looks at me and says “you aren’t allowed to die before me” and my heart contracts. I was always going to die before Travis, I am 16 years older than he is. Still, this moment. … Continue reading →

I had occasion last night to question the wisdom of allowing another person to own their feelings. It’s harder than you think. “Please don’t feel badly about X, because if you do, then I feel badly”.  At the end of … Continue reading →